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gofrogs152

Prayers requested

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7 hours ago, richmondfrog said:

Do you know when the surgery is scheduled?  Been thinking about Tyler all day.

No. Just know that 152 said it was Wednesday. I think she'll check in here with us once she has news to share. 

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49 minutes ago, gofrogs152 said:

The surgery went about as well as can be expected.  They believe they got all of it and there was no visible evidence of disease anywhere else that they could see.  They took only a very little part of his lung as well as a portion of the pericardium around his heart, where it had attached.  He's been in good spirits this evening though a decent amount of pain.  They've upped his pain medicines and I'm looking at him resting in his bed right now.

 

Thank you to everyone for the prayers and well wishes.  It can't put into words what it means to know that people literally around the world are praying for my son.  We needed every last prayer and are so appreciative to everyone who took the time out of their lives to say prayers for Tyler or to send positive thoughts his way.  While the recurrence is still a big set back in many ways, we are taking today's extremely positive outcome as a blessing and looking forward to working with the doctors to developing an aggressive treatment plan and getting him back healthy again.

 

God bless all of you.

This sounds like good news. We'll keep him in our prayers. 

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Thanks guys.  He's slowing recovering from surgery.  Pain management has been up and down, but he's making daily progress.  Talking with oncologist again Wednesday afternoon where we will hopefully make some treatment decisions going forward.

 

I truly appreciate the continued prayers and good thoughts. 

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1 hour ago, gofrogs152 said:

Sorry PD, been very busy.  So he was accepted into a immunotherapy clinical trial, which essentially hopes to train his immune system to identify the cancer cells and kill them.  He did a ton of tests yesterday for the study, which included a Chest CT which showed no remaining signs of cancer.  So the hope is that this new treatment will seek out and destroy any microscopic cancer cells that may remain, and he can get back to his life.  We will do 5 courses of treatment, with each course being a 28 day cycle.  He goes into the hospital next Monday for the first infusion, and hopefully will come home 2 days later.  If all goes well treatmet would be done by end of May.  So apprecaite all prayers that this new treatment destroys any remaining cancer once and for all. 

 

The treatment sounds exciting.  I hope everything goes well.  Immunotherapy is hopefully the future of Cancer treatment.

 

God Bless him and you as well.

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Never apologize, girl. I'm just so happy that Tyler has a good shot at a therapy which will ensure his cancer is gone. That's so encouraging! I hope you can keep us updated on how it all goes. You know we all hold a special place in our hearts for him and you.

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Thanks so much everyone.  The other thing we are doing is sending this most recent tumor out for genetic testing.  They will break down the DNA of the tumor, which may tell us if there are other "druggable" targets that could be effective for treatment purposes.  Hopefully the immunotherapy does the trick, but I'm hopeful the genetic testing will give us more information since he's already done two different types of chemo. 

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PD asked me to give an update on Tyler's progress.  He's done two immunotherapy treatments and it's been a bit of a roller coaster.  He had a lot of complications, like his blood pressure bottoming out about 57/25 during the first treatment.  The treatment causes severe widespread nerve pain which requires high dose narcotics and he ended up in narcotic withdrawal afterwards.  The second time we were much better prepared for all of these and he's done better.  He has a chest CT on March 13th and, assuming that is clear, he will then do three more treatments.  If all goes well, we will be done by end of May.  We have kept his apartment up at college because he likes it and his roommates, so he has something to look forward going back to.  Been rough but we are all keeping one foot in front of the other and hoping this will get rid of the cancer for good.  Yesterday his childhood friend was commissioned as an officer in the Marine Corps outside the US Capitol and Tyler was able to attend.  That did wonders for his mood.  We just reduced the narcotics so we are hoping he can get out and drive some, and get away from mom and dad for a bit.  :) 

 

Prayers for a clear chest CT on the 13th would be much appreciated.  It means a lot to us that so many people around the world are praying for Tyler. 

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